Full Table of Contents
_______________

Abbreviated
Table of Contents

Home Page
Patient Safety
Silence vs
    Safety
Silenced
White wall
    of Silence
Silencing
Conflict Of
    Interest
Psychology of
    Providers
Subjectivity
Blacklisting  
Nurse survey
Loyalty
Mobbing and
    bullying
Trust Us
Defensive
    documenting
Report Rate
Risk
    managemnt
SOAP
Management
Hospitals
Crime in
    medicine
Sexual Abuse
Liability
    Limitations
Free Speech
    for Patients
Exploitation

OSMB Medical
    Boards
Mammography
solutions
Medical errors
Medical
    Complaints

One number
Links

 

Injured patients who want to help and be heard, click here.

 

Thomas Jefferson said that given the choice between government without newspapers and newspapers without government, he would choose to have newspapers.

In medicine we have government without newspapers. Patients cannot find out what they need to know to make informed choices. No one in medicine records or reports the information patients need to know the most. So patients will have to.

Registry of Injured Patients
Linked to Each Other

facebook page for injured patients:
http://tiny.cc/BENEd

As things are now journalists have trouble finding an injured patient to talk to. So do Congresspersons. So do newly injured patients. We could give them hundreds from which to choose.

On the facebook page above, journalists already have posted notes asking to talk to injured patients. That's part of what that page is for. On the one hand, it is a way to become visible. On the other hand, it is the beginning of a registry of injured patients.

Everyone gets their information from providers
so no one knows we are here.

An injured patient wrote to me saying, "It has been a tremendous shock to discover that there are no safeguards for patients . . . you cannot even sue. There is no agency, nothing. The system just smears your name and leaves you for dead."

For two years she had been alone battling to get help, even creating her own site about it, before a search happened to pull up this site and she discovered that there are other people like her.

We need to link to each other to make it so that her first search will connect her with other injured patients. In order to make injured patients more visible, in order to overcome being loners, in order to help newly injured patients find help and information, we need to link together. That is a fledling registry.

Registry of Injured Patients

According to the head of the Institute for Healthcare Improvement, "Registries are invaluable for the improvement of care."

For instance, there is registry of patients with Cystic Fibrosis that enabled them to double their own survival rate by seeing what worked best for them. Caregivers do not do that. They get paid for treating, not healing. There is no economic incentive for them to figure out what is best for patients. Patients need to form registries and groups in order to do that themselves, to determine which treatments and which facilities and which physicians have the best success rate. The last thing the medical community wants is for patients to be able to tell which physicians are good and which are not.

Especially Iatrogenic Injuries

People with iatrogenic injuries find they cannot get treatment for the injuries because no one in medicine will create a diagnosis that could hurt the reputation of someone else in medicine. Other injured patients turn out to be the only ones who will help chart a path through the dark and treacherous aftermath of an adverse event. How did other injured patients get treatment? How did they get their primary care physicians to release their records? How did they get a note into the record about the existence of their injuries when no doctor or nurse willingly will put one there? How can you tell your story without getting sued?

Twaweza

We should create mutual links between injured patients so that search engines will deliver people to those who are linked together. We need to make it possible for search engines to deliver something other than the party line written by providers for searches on terms like "iatrogenic injury." Our stories are the foundation for the safety of future patients.

On FaceBook, Websites, Blogs, You Tube and wherever else you have a presence on the Internet, anyplace with which mutual links can be established, link to us and let the rest of us link to you. Links like that draw traffic. That creates an awareness of patients with iatrogenic injuries as a group. That is the foundation for a registry.

facebook

Click email and tell us how to link to you from here (or phone me at the number at the bottom of this page). We never ask for anything in return other than whatever mutual links you can manage.

Once again, the facebook page is at this link:
http://tiny.cc/BENEd
The long version that of URL is:
http://www.facebook.com/pages/One-Thousand-Injured-Patients/236181953372?created). On facebook it is called 1000 injured patients.

By The Way

To help the search engines understand why we are linked, it would be good if some of the terms below appeared in your online postings near the mutual links. These are some of the relevant terms on which people search most often.

Popular Search Terms:
Medical error, Iatrogenic, Misdiagnosis, medical malpractice, Medical crime, Blacklisting, White Wall of Silence, Patient Safety, medical complaint, medical safety, Nosocomial infection, drug side effects, medical report, medical reporting, medical record, Endemic methicillin-resistant Staphylococcus aureus (MRSA), and state medical board.

There are other terms we would add if people searched on them, but most get too few hits to be ranked by search engines. However, if there are terms you think should be on the list, let us know. We continue to work on the list.

Twaweza is Swahili for “we can make it happen.”

 

Medicine

Where souls are forgotten,
Where black is the color, where none is the number
And I'll tell and think it and speak it and breathe it
And reflect it from the mountain so all souls can see it
Then I'll stand on the ocean until I start sinkin'
-Bob Dylan

After they've injured you and, not just cast you aside, but done everything in their power to crush you, that's what the world is like.
And they don't even know they do that to patients.

_____________________________________________________________

Home | Table of Contents | It's a Path
Silence versus Patient Safety
Loyalty versus Patient Safety
The White Wall of Silence versus Patient Safety
Blacklisting Patients
Freedom of Speech for Patients
Medical Complaints - How to

 < Truth / Justice / Patient Safety >
It's a path

If you want to say something about any of my sites, my email address is on almost every page. I am listening. I will be sensitive to what you say.

To contact me, click email
Copyright © 2011 All rights reserved
Site revised November 29, 2011